Clicking interwest consulting group on this link you can see the Power Point which it has created,

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Silvia, have SLE and has prepared a presentation that asks to be distributed to as many people as possible to see if it gets from internet sensitize or get someone interested in their study.
Clicking interwest consulting group on this link you can see the Power Point which it has created, and if conoceis someone else affected by this syndrome you can put you in touch with Silvia and the group that was created to support them.
Hello Silvia, I'm interwest consulting group Patricia, I have 43 years and am affected by SKT in my native Argentina, I had surgery three times, when she was a child, I have two operations in outer side of the left leg, and one on the inner side thereof , according I think with these operations, prevented the affected leg grew more than the other, but with that and everything interwest consulting group is 1ctm, longer than the other, the death my mother no longer followed my treatment, so stay to resolve the issue, lymph packages, and restorative surgery, to help minimize scarring, which has given me throughout my life, many psychological problems, unable to go to the beach, or get a dress / skirt, my whole life has accompanied me pain last night for example, could not raise me to the bathroom, the leg pain was unbearable, and the soothing who had taken, to effect the 25th I turn with a doctor vascular, which probably I will have to carry information about the SKT, even if it seems incredible, most doctors have told them that the issue had no idea of the disease, now finally interwest consulting group I decided to see what I can do, to at least fix the aesthetic issue, but if you're placing interwest consulting group on the topic, I, I beg me currents, figurate how good it was the doctor who treated me in arg, which 43 years ago, the brains were broke, to help me, at that time it was still, more rare disease, I guess today with the new technologies, something else will be able to do, and I'm willing to try and fulfill my dream to wear a skirt !!! I hope your answer, it is the first time in my life that I dare bring it up.
HELLO MY NAME IS ANDREA HAVE 40 YEARS AND I LIVE IN ARGENTINA HAVE TWO TEENAGERS WITH YOU TO CONTACT ME ENCANTARIA POWER spend OUR CHAT AND PUNISHMENT NOT KNOW HOW YOU UNDERSTAND THE SUBJECT OF NO POWER TOILET interwest consulting group FOR PAIN OR INABILITY TO DO SOMETHING NOT WEAR THE ELASTIC MEDIA, JUST LIKE YOU I WAS OPERATED GIRL IN THE HOSPITAL FOR CHILDREN. ALSO DO NOT USE THE BEACH THEME POLLERAS ETC, YOU CAN CONTACT ME WITH MUCH APPRECIATE YOU AND FIND SOMETHING TOGETHER ON THIS DISEASE THANK ANDREA PD.mi mail is "andreascinica@hotmail.com"
Hello my name is Bernardo and I have a 12 year old daughter suffering from this horrible syndrome. From 16 months is being treated at the Children's Hospital interwest consulting group of Boston. I would like to get in touch with you
Hi Bernardo, I would like'd interwest consulting group tell me how you managed'll see her there in that hospital is buenisimo in this topic, my baby is 15 months and has the syndrome, did you get them to help them tell me that sometimes you pay for treatment I half investigate and realized it was very expensive cost, agradecere you tell me something and that this leads your baby. Hugs Sandra mondragon. s_mondra@yahoo.com.mx
hello is of great grief that overwhelms us when we learned of this syndrome interwest consulting group in our children, something weird, my son is 17 springs, and just learned of this syndrome on 17 December 2013. begin their studies with venous doppler echo, Dr . I will talk to analyze and 7th of January to see what we can do for my son, the truth hurts. feel so helpless. interwest consulting group
Hi Bernardo: I am medica Rosario-Arg and have a patient of 20 years with SKT not only hipertrfia lower limb, but also espenomegalia (enlarged spleen) and varicose veins throughout the digestive tract so cal already bleeding. If possible I would be interested to know who you contact in Buenos Aires and also make contact by mail with the Boston hospital because these people have no social work. From already thank you very much. Adjnto my mail: yimos7@yahoo.com
Hi Bernardo if you can communicate with me I'd interwest consulting group appreciate I have a 7 year old girl with SKT and want to go to hospital childen`s my email is lauredlinarezyahoo.es am from Venezuela, so you can share your experience there, interwest consulting group thanks.
Hi Bernardo my daughter has the syndrome also we live in houston. And she. He served in the Texas childrens hospital. I wonder k treatments will have burst out. Your daughter yk my daughter's chat co. People your age and k have the same situation she is 14 years my email is gsonia97@yahoo.com.mx thanks